A poem for Severe ME Understanding and Remembrance Day.

  

https://youtu.be/l12BDrPn0rc

A new video poem for all who suffer, trapped in a Severe ME diagnosis.

August 8th is the day we remember all those who have died and raise awareness all those mostly invisible people whose lives are devastatingly impacted. 

May there be light and hope for them all. Amen

Remember me who you never see, new video song

A Powerful expressive song and drawings by Greg.

https://youtu.be/clDtls8PdyU

Please do listen to this song.

Lament

 

Lament to me is more than sadness, more than loss, more than pain, more than emptiness, it has a power and and a sense of truth and rightness, of love in a fire of expression. All mingle together in a powerful way to enable an outpouring of feeling that encompasses the greatness of  these. It may feel unquenchable, yet it is a necessary part of honouring those we have loved and lost to death, whose lives no longer bless our world, yet whose spirits live on in so many echoes from the past.

August 8th A Time to Especially Remember All our Friends who have Died with Very Severe ME.

Every year we seek to honour the tragic loss of life of so many of our friends who have died over the years with Very Severe ME.  Here is our Tribute this year, for a very special friend who died earlier this year, Kara Jane Spencer. We hope that everyone who knew Kara will find comfort in the words.

http://www.holyway.co.uk/karatribute/index.html

It is a great honour to be featured on Kara Jane Sings Blog. See here:

https://karajanesings.com/2023/07/30/remember-us/?fbclid=IwAR2_FBMzeSSm3sNafbfyLBhVp4AtD8AjOhNoQR_yMym9jnBbMDN8NsDrfdA

Not If, a song for those grieving

 Grief can last a very long time, can overwhelm us at any moment, breaks our hearts again and again. Here is a song to bring comfort.

https://m.youtube.com/watch?v=KIO3txDPF3E

Trust

 Lord in you we trust

Help us grow strong in your Love

and always follow the path 

of Truth that will lead us wisely on. Amen

Waiting, a blessing

 For all the moments I have to wait for anything at all

may they bless me

For all the people I cannot see because I am having to endlessly wait

may they bless me

For all the moments I cannot do anything

may they bless me

For every non-event in my life may I see the wonder of the moment instead

may it bless me

For every inaction I endure may there be a blessing in disguise

may it bless me

For every moments pain may I feel grace in action upon me

may it bless me

For all moments happy or intolerable may they still bless me